LIfe In the Eyes of A Fibromyalgia Sufferer….

Fibromyalgia

What is it?

My answer is what isn’t it?

It’s everything that can make a person miserable and distraught.  I am writing this because I deal with this everyday and so many people are affected by this and I want  people to know they are not alone.  I have done reading and research on the symptoms and treatments and well, if I can be honest everything points to take more pills, yes easy enough to hand someone a bottle of pills and tell them to take them and it will all be okay.

WRONG!!!

The side effects of these medications are horrific and I know, I was prescribed a “popular” medication for the pain and treatment, the only thing it did was make me suicidal and not want to live, no pain relief no temporary pain free time, gain massive amounts of weight and make you like a zombie. The pain was still there. Now here is what bothers me, and I am not going to sugar coat anything, I have had this going on for years, and never ever once was I offered any kind of pain relief. When I did ask I was made to feel like a “junkie” looking for a fix, and was told to go see a Pain Management Specialist, Physical Therapy and all sorts of other bullshit.

This is my personal daily struggle.

Picture this.

I wake up (when I can sleep which is not often) and I feel like every muscle in my body has been severely beaten, it feels like fire ants are inside my nerves, bones and eating and burning away at me. If I am lucky, I wake up with just mild headache and not an overbearing Migraine which cripples me all day,  neck and back pain that makes it difficult to do anything.

Now, add heat , cold,  light, noise and weather sensitivity to that and the icing on the cake, stress, anxiety, depression you are a disaster. You literally feel alone and just want to get out of your body and hide.  According to many
“Medical Sites” they list a range of symptoms that we suffer with, what they do not mention is the hell your living with, but they again  mention more pills! I decided to list some of them in hopes maybe more people and skeptics will read and see what myself and others suffering from this go through.  So before you say to someone It’s all in your head think before you speak, this is a terrible and life changing illness.
I would love to see your ideas and share what you have used for relief.

  • Pain symptoms of fibromyalgia
  • Deep muscle pain and soreness
  • Morning stiffness
  • Flu-like aching
  • Radiating pain
  • Sensitivity to touch
  • Other symptoms of fibromyalgia
  • Problems sleeping
  • Fatigue
  • Difficulty thinking clearly, also known as “fibro fog”
  • Difficulty performing everyday tasks
  • Stress and anxiety
  • Depression
  • Migraine headaches

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7 thoughts on “LIfe In the Eyes of A Fibromyalgia Sufferer….

  1. You summed it up perfectly my dear fellow sufferer. I struggle with this every day and sadly many even those closest to me, don’t understand the true daily struggle we go through. We hide a lot of it too which doesn’t help either. But shame, fear, denial, and other reasons cause of to do this. Thank you for putting this into words!

    Liked by 1 person

    • Hi Jeanene, I think the world needs to understand what we suffer with everyday, and that is affects our bodies, mind, well being and limits us to what we can do, I think if more people were educated and would take the time to really understand the depth of this Illness it would make a huge difference. Thanks so much for your comment, another Brave Fibro warrior.

      Liked by 1 person

  2. I have been recently diagnosed after suffering with all of these the last few years. Having another disease, rare genetic disorder, the doctors were quick to say that my symptoms were a manifest of side effects from meds, (which I am on very few) or that it was neuropathy, and barometric pressure causing the migraines, pain from resting TOO much etc. I felt like everything was in my head and I got extremely depressed. Until I saw a Rheumatologist. I was diagnosed with polyarthralgia arthritis along with fibromylagia. Some mornings it’s all I can do to open my hands and walk on burning coals and cut glass to go to the bathroom. Thank you so much for this. Please keep up the good work letting people know what we go through. Many Bright Blessings to you and all of you reading this xo

    Liked by 1 person

  3. Exercise helps me somewhat but it’s always there. Some days worse than others and I’m dreading winter :(. I so recognize your description of waking up! I don’t think anyone else can really understand what a big deal it is for us to just even get up in the morning.

    Liked by 1 person

  4. It is amazing to me how much we can tolerate, the constant changing of medications, and the things we will do not to suffer on a daily basis. I am lucky my husband bought me a heated blanket for winter and it sometimes does help. I also use hot baths and Sea Salts from my boutique to relax my muscles and relieve some of the pain, even if it is only a temporary fix that little bit of time in the bath and soaking is like heaven. Has anyone ever used one of those TENS machines?

    Like

  5. Trust me your not alone, I have met so many people who are suffering with this and it saddens me that more attention is not given to it, Winter for me is the worst time of year my flares are 3 times as worse and all I can do is just keep warm and stay inside….

    Like

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